Designed to extend the impact of Rare Disease Day, 24/364 will include a “day-in-the-life” video series profiling amazing families affected by rare diseases.

Plans are also underway to hold the 24/364 Rare Disease Film Festival in early 2027, inviting amateur and professional filmmakers to share their stories with the world.

CG Life, a medical marketing agency focused on rare disease and precision medicine, today launched 24/364, a cultural brand platform bringing year-round visibility to the lived experience of rare disease. Building on the momentum of Rare Disease Day, the 24/364 brand will drive awareness, connection, and action to keep rare disease at the forefront of health and social conversation.

This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/20260303730020/en/

24/364 Keeping the light on for rare

More than 300 million people worldwide live with a rare disease, but they are often under-recognized, under-diagnosed, and under-reported. A lack of awareness and understanding means patients and families often face prolonged diagnostic journeys, limited treatment options, and fragmented care. These challenges are exacerbated by the absence of sustained public and media attention.

CG Life created 24/364 to reinforce the importance of focusing on rare diseases every day. The brand will elevate more stories from the rare disease community with insights from patients, parents, partners, and healthcare providers. It will also highlight many areas of progress in research and medical care. By using real stories from the community, 24/364 will work to build a stronger connection between rare disease and broader conversations in healthcare, research, policy, and culture.

“Our goal in creating 24/364 is to drive new insights and awareness into how rare diseases affect people, families, and communities and inspire change and support throughout the year,” said David Ormesher, CEO of CG Life. “By working together, we can make rare a bigger part of everyday health conversation and culture. Through the power of film, storytelling, and community, 24/364 will keep the light on for rare.”

Joining other organizations currently building awareness around a single day or month, 24/364 will expand the focus on rare disease every day through timely storytelling, insightful perspectives, and community connections. The 24/364 brand will roll out through a series of year-round activations designed to create more visibility and awareness, as well as new levels of support and understanding, including:

• The Films: Working with leading documentary filmmakers, 24/364 will present a series of intimate profiles of individuals and families affected by rare diseases. These short films will follow different families throughout the day, highlighting their resilience and commitment to one another. The first documentary will be released in spring 2026.

• The 24/364 Brand: The program will also invite everyone who cares about people living with rare diseases to show their support with branded 24/364 merchandise. By wearing and sharing this identity, supporters can tell the world they want to make a difference in the lives of people living with rare diseases every day.

• The Film Festival: The 24/364 initiative will also invite members of the rare disease community to help build awareness by telling their stories through film. These films will be honored at a special multi-day film festival in San Diego, planned for early 2027, that will showcase innovative storytelling from both amateur and professional filmmakers.

Additional details on these initiatives will be announced later this year.

About 24/364

24/364 is a cultural brand platform created by CG Life to bring year-round visibility to the lived experience of rare diseases. Through storytelling, education, and experiences, the 24/364 brand will drive awareness, connection, and action to keep rare disease at the forefront of health and social conversation, every day of the year. Learn more at 24364.life.

About CG Life

CG Life is a different breed of agency, built for the unique challenges of bringing precision medicine to market. Biopharma companies advancing therapies for rare and hard-to-treat diseases need a partner who has been there before, is fluent in complex science, is deeply attuned to rare disease ecosystems, and can orchestrate every step of commercialization. Learn more at CGLife.com.

View source version on businesswire.com: https://www.businesswire.com/news/home/20260303730020/en/

“By working together, we can make rare a bigger part of everyday health conversation and culture. Through the power of film, storytelling, and community, 24/364 will keep the light on for rare.” - David Ormesher, CEO of CG Life